Privacy Policy
Last Updated: March 31, 2026 The PPP3CA Hope Foundation ("we," "us," or "our") is committed to protecting the privacy of our visitors, donors, and the families we support. This Privacy Policy explains how we collect, use, disclose, and safeguard your information when you visit our website https://www.ppp3cahope.org/.
1. Information We Collect
We may collect personal information that you voluntarily provide to us when you: Contact Us: Name, email address, and any information provided in your message through our contact forms.
Donate: Name, billing address, email, and payment information (processed securely through third-party payment processors like PayPal or Stripe).
Join Our Community: Information about your connection to PPP3CA-related syndrome if you choose to share your story or participate in our research initiatives.
Newsletter Subscription: Your email address if you sign up for updates.
2. Automatically Collected Information
When you visit our website, we may automatically collect certain information about your device, including: IP address, browser type, and operating system. Pages viewed and the dates/times of your visit. Cookies and tracking technologies to improve your user experience and analyze website traffic.
3. How We Use Your Information
We use the information we collect to: Provide information about PPP3CA-related syndrome and our foundation’s mission.
Process donations and issue tax receipts. Respond to inquiries and provide support to families. Facilitate and promote research directed towards a cure. Send newsletters, updates, and fundraising appeals (you may opt-out at any time). Monitor and analyze website usage and trends.
4. Disclosure of Your Information
We do not sell or rent your personal information. We may share information with: Service Providers: Third-party vendors who perform services for us (e.g., payment processing, email delivery, website hosting).
Research Partners: Aggregated or de-identified data may be shared with researchers to advance the understanding of PPP3CA, but individual personal details will not be shared without explicit consent.
Legal Requirements: If required by law or to protect our rights, property, or safety.
5. Data Security
We implement appropriate technical and organizational security measures to protect your personal information. However, please be aware that no method of transmission over the internet is 100% secure.
6. Your Rights
Depending on your location, you may have the right to: Access the personal information we hold about you. Request that we correct or delete your personal information. Object to or restrict the processing of your data. Withdraw consent at any time.
7. Third-Party Links
Our website may contain links to other websites (e.g., Citizen Health, Simons Searchlight). We are not responsible for the privacy practices of these external sites.
8. Children’s Privacy
Our website provides information regarding a condition that affects children, but we do not knowingly collect personal information directly from children under the age of 13 without parental consent.
9. Changes to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated "Last Updated" date.
10. Contact Us
If you have any questions about this Privacy Policy, please contact us at:
PPP3CA Hope Foundation
Email: info@ppp3cahope.org
Address: PO Box 35, Greenvale, NY 11548, USA