Our Community

As parents who have children with PPP3CA , we have found strength in coming together - supporting each other and working toward a cure.

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If you are a parent/caregiver of someone with PPP3CA, please join our community. This includes completing the PPP3CA registry, as well as joining Simons Searchlight (learn more here). Your participation helps advance research and bring us closer to treatments.

When you support the PPP3CA Hope Foundation™, you're not just donating - you're standing with families, accelerating science, and lighting the path forward for children living with rare neurodevelopmental disorders.

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Because every child deserves a change to thrive.