One of the most beautiful things about the rare disease community is how we show up for one another. When the CSNK2B Foundation invited us to join their awareness campaign with Kansas University Baseball, we were deeply moved by their generosity — and grateful to KU for providing such a meaningful platform to amplify rare disease awareness. Jacci’s son Cameron had the honor of throwing out the first pitch — in honor of his PPP3CA warrior sister Claire, and every child courage

On May 17–19, Karol Sasorski — a member of our Parents Advisory Board — represented PPP3CA Hope Foundation at Digital Dragons in Kraków, Poland, with the goal of raising awareness for our cause within the game development community. Although this was the foundation's first time engaging with the gamedev world in this way, the experience proved both rewarding and productive. Beyond simply introducing our mission to a new audience, Karol was able to initiate several promising c

April 1, 2026: To our supporters and readers, Thank you for taking the time to learn, support, and stand with us. Please take a moment to explore the newly updated PPP3CA Hope Foundation website. You can now easily access our latest research efforts, partnerships, published papers, events, merchandise, and the incredible people behind our foundation. We’re proud of how far we’ve come—and excited for what’s ahead. Today also marks something incredibly meaningful—our first-eve