Events

Upcoming Events
 

International PPP3CA Awareness Day: April 1, 2026

A global day to raise awareness, share our stories, and show support for children affected by PPP3CA — wear stripes and help us spread the word!

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Race for Rare 3rd Annual Virtual 5K Run/Walk: August 23, 2026

Join supporters from anywhere in the world to move for a cause and help fund critical PPP3CA research. 

 

Check back for registration details soon!

 

Race for Rare 3rd Annual 5K Run/Walk in Topeka Kansas: August 23, 2026

Our signature in-person event bringing families, supporters, and community together for a meaningful day of connection, awareness, and impact. 

 

Check back for registration details soon!

 

Past Events
 

Soul Cycle PPP3CA Ride in Greenwich, CT: December 7, 2025

A powerful community ride that brought supporters together to raise awareness and funds for PPP3CA research.​

 

Race for Rare Ireland 5K Run/Walk: September 28, 2025

An international expansion of our mission, uniting families and supporters in Ireland to raise awareness and support research for PPP3CA.​

 

Race for Rare 2nd Annual Virtual 5K Run/Walk: September 28, 2025

A global show of support as participants walked and ran from their own communities to advance our mission.

 

Race for Rare 2nd Annual 5K Run/Walk in Topeka Kansas: September 28, 2025

A growing community event that united families and supporters to raise awareness and critical research funding.​

 

PPP3CA Community Virtual Meet: October 27, 2024

A meaningful opportunity for families to connect, share experiences, and build support within the community while hearing from our researchers about progress in PPP3CA studies.

 

Race for Rare 1st Annual Virtual 5K Run/Walk: September 29, 2024

Our inaugural virtual event that helped launch a movement of awareness and support for PPP3CA.

 

Race for Rare 1st Annual 5K Run/Walk in Topeka Kansas: September 29, 2024

The very first Race for Rare event that brought our community together and laid the foundation for future impact.


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Interested in getting involved?
Whether you're planning a small community fundraiser, organizing a larger event, or exploring sponsorship opportunities, we would love to partner with you.
Every effort helps drive awareness and fund critical research for PPP3CA.  

 

Please reach out to our Director of Outreach, Jacci, at jacci@ppp3cahope.org to start the conversation.